Survivor and Clinician Assessment of Survivorship Care Plans for Hematopoietic Stem Cell Transplant Patients: An Engineering, Primary Care, and Oncology Collaborative for Survivorship Health.

Survivor and Clinician Assessment of Survivorship Care Plans for Hematopoietic Stem Cell Transplant Patients: An Engineering, Primary Care, and Oncology Collaborative for Survivorship Health.

Biol Blood Marrow Transplant. 2019 Feb 11;:

Authors: Morken CM, Tevaarwerk AJ, Swiecichowski AK, Haine JE, Williams ZT, Norslien K, Arroyo N, Zhang X, Campbell B, Mendonca EA, Juckett MB, Sesto ME

Abstract
BACKGROUND: The long-term care of hematopoietic stem cell transplant (HSCT) survivors poses special challenges due to a myriad of possible chronic and/or late complications. Survivorship care plans (SCPs) have been proposed as a tool to communicate information regarding the late effects of treatment and recommended follow-up care to clinicians and survivors. Our primary objective was to determine SCP content and format as well as to assess preferred timing of SCP provision following HSCT.
METHODS: HSCT survivors and non-transplant clinicians (oncologists and primary care) were invited to participate in a survey evaluating usefulness and utility of a sample HSCT-specific SCP with treatment summary generated by auto-population from an electronic health record (EHR).
RESULTS: All participating survivors (n=29) and clinicians (n=18) indicated a desire to receive SCPs. Over 85% of participants perceived information about treatments received, recommended follow-up and health maintenance including vaccinations, survivor and clinician resources, and graft versus host diseases and other late/chronic side effects to be useful. The majority of survivors also thought care team contact information was useful. Additionally, over 85% of survivors and clinicians agreed that the SCP increased their understanding of treatments and chronic/late side effects, improved health care provided, and were satisfied with the SCP and found it understandable and easy to use. The majority of survivors thought additional information should be added to the SCP, whereas some clinicians thought the SCP was too long. Survivors prefer to receive the SCP as a paper document at the end of a regular follow-up visit and review it with a cancer clinician. Clinicians would prefer to receive the SCP through the EHR.
CONCLUSION: These results will help improve design of future SCPs for use by HSCT survivors and clinicians. Future work will include leveraging the EHR to ease the burden of creating user-centered documents.

PMID: 30763727 [PubMed - as supplied by publisher]

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