Patient and Family Engagement in Designing and Implementing a Weaning Trial: A Novel Research Paradigm in Critical Care.

Related Articles

Patient and Family Engagement in Designing and Implementing a Weaning Trial: A Novel Research Paradigm in Critical Care.

Chest. 2017 Jul 04;:

Authors: Burns KEA, Devlin JW, Hill NS

Abstract
The call for meaningful patient and family engagement in research has recently gained considerable momentum. In this article, we define patient and family engagement broadly and specifically in clinical research. Using a multicenter, North American weaning trial as an exemplar, we describe our early experiences as clinical researchers with patient and family engagement. We illustrate the role of our Patient and Family Advisory Committee in trial design and implementation. Through our experiences, we share our insights regarding the perceived opportunities and also highlight some challenges associated with engaging patients and family engagement in critical care research. Although 'engagement science' is in its infancy, engaging patients and families in research holds promise as a novel research paradigm that will not only provide new insights into the questions, methods, and outcomes used in ICU research, but will also make investments in research more accountable, and ensure a strong 'patient and family centered focus' of our research.

PMID: 28687380 [PubMed - as supplied by publisher]

from # All Medicine by Alexandros G. Sfakianakis via Alexandros G.Sfakianakis on Inoreader http://ift.tt/2tWbaNi
via IFTTT